To conduct research that allows for the study of the causes involved in the development of diseases, it is paramount to have access to biological samples from patients and healthy donors. This is necessary to improve the current and future treatments and daily lives of people affected by different pathologies. Biobanks are responsible for collecting, processing and preserving these samples in conditions that guarantee their availability, quality and traceability, thus allowing for their use in research aiming at preventing, diagnosing and treating diseases.
If you would like to donate samples, you can directly contact the staff of this platform by calling (+34) 91 529 05 29 or sending an e-mail to BioBancoVIH.firstname.lastname@example.org. We will put you in touch with the medical staff that work in biological material transfers, and they will inform you about all the details related to the donation of samples to the HIV HGM BioBank and answer all your questions an enquiries. If you decide to participate after receiving this information, you will have to sign a document (informed consent) in which you will agree to transfer your samples to this BioBank.
Any relationship between the sample and your personal identity is strictly confidential. Moreover, we inform you that the results obtained in the different studies carried out with your samples may be disclosed in scientific meetings, medical congresses or papers; nevertheless, your identity or any data that may identify you will never be revealed and will always remain confidential.
As soon as you give your consent to the usage of your biological material, it becomes subject to a process of dissociation so it can be identified only by a number and/or code, while your data is kept properly coded. Therefore, the researchers to whom your samples are handed over will never know your identity nor access any other data that may identify you; however, they will be able to access other data such as your age or gender.
Donation has an altruistic character as stated by law, so you will not get any material reward from it, either monetary or of any other kind. However, the knowledge created thanks to the studies carried out with your samples and data will be a valuable source of information that will contribute to a better understanding of diseases. This in turn will result in advances in medicine and the improvement of patient care.
Your participation is voluntary and you are free to request the withdrawal of your samples from HIV HGM BioBank, as long as they have not been turned into anonymous samples – and thus become untraceable, nor handed over to ongoing research projects. Requests for withdrawal of samples can happen at any time and for no particular reason, no explanations are necessary; your future treatment will not be negatively affected by such a request.
If you would like to request the withdrawal of your samples, please inform your doctor and ask him or her to contact HIV HGM BioBank about your request, or contact the staff of this platform yourself by calling (+34) 91 529 05 29 or sending an e-mail to BioBancoVIH.email@example.com.
In this case, we will proceed to destroy your samples or to make them and their associated data anonymous, following your request. However, the destruction will not affect research data from studies that have already taken place and where your biological material was used.
If it is your wish and you request it expressly and beforehand, the HIV HGM BioBank will inform you about ongoing studies using your samples. To obtain this information, please contact the HIV HGM BioBank staff by calling (+34) 91 529 05 29 or sending an e-mail to BioBancoVIH.firstname.lastname@example.org.
The data obtained from your samples will not be communicated either to you or your doctor, except in cases in which the discoveries have a significant implication in your health and there is a real possibility of improvement. In this case, you will have the right to access data obtained from your samples, including genetic data.
The results obtained from your biological material will be analysed by a group of researchers and experts. It is possible to get information about your health from the data coming from your samples, so you have the right to decide about the communication of these results and to exercise your right to not be informed if it is your wish.